Information Statement
Resmed Corp, including but not limited to any related body corporate (individually and together referred to as Resmed) is seeking volunteers to join our Resmed Research Registry. Resmed is seeking volunteers who:
- Have been diagnosed with Sleep Disordered Breathing, Obstructive Sleep Apnea (OSA) or Central Sleep Apnea (CSA); or
- Use Positive Airway Pressure (PAP) therapy; or
- Have been diagnosed with a respiratory condition (e.g Chronic Obstructive Pulmonary Disease or asthma); or
- Are a caregiver of a patient with a diagnosed respiratory condition ; or
- Have a bed partner who has been diagnosed with SBD, OSA or CSA; or
- Are healthy volunteers interested in participating in research (e.g., clinical trials, usability evaluations, online surveys).
Users of non-Resmed equipment are welcome and encouraged to register.
What is the Resmed Research Registry?
The Resmed Research Registry is a database of volunteers who Resmed may contact from time to time to ask for their participation in ongoing sleep and respiratory research. Volunteers are given the opportunity to provide feedback aimed at improving product innovation and the patient experience, as well as to help us improve our offered products and therapy delivery.
What does registration for the Resmed Research Registry mean?
Registering on the Resmed Research Registry is completely voluntary, free of charge and without obligation.
By registering for the Resmed Research Registry, you consent to be contacted by the Resmed Medical Affairs team via email, phone and/or text message to be invited to participate in research, including clinical trials, usability evaluations, focus groups, interviews and surveys.
All Resmed clinical research activities are conducted in accordance with the ethical principles and U.S. regulations and guidelines, and comply with Institutional Review Board requirements as needed.
Registering for the registry does not require you to participate in any trial, nor does it guarantee that you will invited to participate.
What information will we collect about you?
We will collect your personal information and, in some cases, your health information from you directly whenever it is reasonable and practical to do so. We may collect your personal and health information when you participate in any research, clinical trial, usability evaluations, focus groups, interviews, and surveys. Beyond the personal information you input into the Registry, we will always obtain your consent before collecting further personal or health information. Personal information and health information have the same definitions as defined within our Privacy Policy.
The purpose for collecting your information
If you volunteer to register for the Resmed Research Registry, we will collect your personal information and may collect your health information from or about you to provide us with feedback aimed at improving product innovation and the patient experience, as well as to help us improve our offered products and therapy delivery. This information may be used to contact you for future participation in research studies, including low-risk clinical trials, usability studies, user experience studies, online surveys, etc. You will be provided with additional information about a study on a case by case basis, and your participation is entirely voluntary.
Who we disclose your information to
We may disclose your personal and health information to our third-party service providers such as third-party data processors who we engage to provide aspects of our service on our behalf. These service providers are contractually required to keep your information confidential and to use your information for the sole purpose of performing the services we have engaged them to provide.
Overseas disclosures of your information
For North American users, the website and services are hosted primarily on servers located in the United States. Your personal information will be processed in the United States.
Access to and correction of your information
You can request access to the personal information we hold about you in relation to the Resmed Research Registry and seek correction of that information by contacting the Privacy Officer (see below).
You may also contact the Resmed Research team to be removed from the Resmed Research Registry at any time, without consequence and for any reason. Any data that we have previously collected from you (as part of a research study or otherwise) will be stored and handled in accordance to the informed consent forms of those corresponding studies or programs. Electing to be removed from the Resmed Research Registry will not affect your relationship with Resmed in any way.
How to contact us
If you have any questions about the Resmed Research Registry, you may contact the Resmed Research team (within Medical Affairs) by email at research.registry@resmed.com.
If you have any questions about our management of personal information or compliance with regulations such as, but not limited to, the California Consumer Privacy Act of 2020, as amended by the California Privacy Rights Act of 2023 (“CCPA”) and the Virginia Consumer Data Protection Act (“VCDPA”), you may contact:
In writing:
Privacy Officer
Resmed Corp.
9001 Spectrum Center Blvd, San Diego, CA 92123
Tel: 1-800-424-0737
By email:
privacy@resmed.com
Our Privacy Policy
For more information on how Resmed collects, uses and discloses your personal and health information when you’re a research participant, and your rights in relation to that data, please refer to Resmed’s Privacy Policy.